ACT UP and CDC Meeting About Changing the Definition of AIDS (Tape 1)
subject: AIDS (Disease) AIDS (Disease)--Political aspects--United States; ACT UP (Organization); AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials ; Drugs--Testing ;Clinical trials of drugs ; Drug bioscreening ; Drug trials ; Drugs--Clinical trials ; Drugs--Effectiveness--Testing ; Drugs--Evaluation ; AIDS (Disease) in women
description: Meeting at the CDC in Atlanta, Georgia between representatives of ACT UP and CDC Officials about changing the Centers for Disease Control's definition of AIDS to include infections that women and injection drug users were getting.
description: Meeting at the Centers for Disease Control, Atlanta, GA, November 19, 1990 between representatives of ACT UP and CDC Officials about why they should change the Centers for Disease Control's definition of AIDS to include infections that women and injection drug users were getting.
creator: Donated by Maxine Wolfe on 1993-07-26
date: 1990-11-19
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2016
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACT UP and CDC Meeting About Changing the Definition of AIDS (Tape 2)
subject: AIDS (Disease) AIDS (Disease)--Political aspects--United States; ACT UP (Organization); AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials ; Drugs--Testing ;Clinical trials of drugs ; Drug bioscreening ; Drug trials ; Drugs--Clinical trials ; Drugs--Effectiveness--Testing ; Drugs--Evaluation ; AIDS (Disease) in women
description: Meeting at the CDC in Atlanta, Georgia between representatives of ACT UP and CDC Officials about changing the Centers for Disease Control's definition of AIDS to include infections that women and injection drug users were getting.
description: Meeting at the Centers of Disease Control, Atlanta, GA, November 19, 1990 between representatives of ACT UP and CDC Officials about why they should change the Centers for Disease Control's definiton of AIDS to include infections that women and injection drug users were getting.
creator: Donated by Maxine Wolfe on 1993-07-27
date: 1990-11-19
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2017
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACT UP and NIAI Meeting About Natural History Study of Women with HIV (Tape 1)
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: Meeting between NIAID employee Diane Hartnell and ACT UP, Women with HIV/AIDS, and AIDS activists in Bethesda, Maryland regarding the inclusion and diversity of women in AIDS studies, sexual health, ACTG, and pediatric care.
description: Meeting between ACT UP and Women with HIV/AIDS and AIDS activists Seh Welch, Mary Lucy, Maxine Wolfe and National Institute of Allergy and Infectious Diseases (NIAID) employee Diane Hartnell in Bethesda, Maryland. Hartnell, who began at the NIAID as Sten Vermund's assistant, discusses research and resources for health information regarding HIV/AIDS infected women, in addition to other issues involving women's health. Welch, Lucy, and Wolfe raise concerns about the inclusion of women in AIDS studies, sexual health, the ACTG, pediatric care, and diversity in research participants (especially Native American women).
creator: Donated by Maxine Wolfe on 1993-07-23
date: 1991-12-06
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACT UP and NIAID Meeting About Natural History Study of Women with HIV (Tape 2)
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: Meeting between NIAID employee Diane Hartnell and ACT UP, Women with HIV/AIDS, and AIDS activists in Bethesda, Maryland regarding research, including the ACTG, women's natural history, sexual health, pregnancy, and questionnaires.
description: Meeting between ACT UP and Women with HIV/AIDS and AIDS activists Seh Welch, Mary Lucy, Maxine Wolfe, and Marina Alvarez and National Institute of Allergy and Infectious Diseases (NIAID) employee Diane Hartnell in Bethesda, Maryland. Hartnell, who began at the NIAID as Sten Vermund's assistant, discusses research and resources (like the ODB database) for health information regarding HIV/AIDS infected women, in addition to other issues involving women's health. Welch, Lucy, Alvarez, and Wolfe raise concerns about the research questionnaires and practices, especially questions about pregnancy, the ACTG, women's natural history, sexual health, drug users, and the MACS study.
creator: Donated by Maxine Wolfe on 1993-07-27
date: 1991-12-06
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACT UP and NIAID Meeting About Natural History Study of Women With HIV (Tape 3)
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: Meeting between NIAID employee Diane Hartnell and ACT UP, Women with HIV/AIDS, and AIDS activists in Bethesda, Maryland about AIDS research. Side B includes discussions about first women's natural history study with other NIAID employees.
description: Side A: Meeting between ACT UP and Women with HIV/AIDS and AIDS activists Seh Welch, Mary Lucy, and Maxine Wolfe and National Institute of Allergy and Infectious Diseases (NIAID) employees, including Diane Hartnell, in Bethesda, Maryland. Hartnell, who began at the NIAID as Sten Vermund's assistant, discusses research and resources for health information regarding HIV/AIDS infected women, in addition to other issues involving women's health. Welch, Lucy, and Wolfe raise concerns about the research practices, pregnancy and AIDS, and gynocological infections. Side B: Meeting between Women with HIV/AIDS and AIDS activists Lauren Thomas, Marina Alvarez, Mary Giguere, Maxine Wolfe, and other ACT UP activists and National Institute of Allergy and Infectious Diseases (NIAID) employees about the first natural history study of women with HIV/AIDS. Although catalog entry lists Side B as first ACTG meeting with Sten Vermund, discussions do not include Vermund and focus on epidemiological issues for the first natural history study of women with HIV.
creator: Donated by Maxine Wolfe on 1993-07-23
date: 1991-12-06
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACT UP and NIAID Meeting on Women and HIV/AIDS
subject: AIDS (Disease) AIDS (Disease)--Political aspects--United States; ACT UP (Organization); AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials ; Drugs--Testing ;Clinical trials of drugs ; Drug bioscreening ; Drug trials ; Drugs--Clinical trials ; Drugs--Effectiveness--Testing ; Drugs--Evaluation ; AIDS (Disease) in women
description: Director of NIAID, Tony Fauci, listens to a presentation by ACT UP activists from New York and Washington, D.C. about the neglect of research for women's health issues in contrast to men's, plus statistics about women with AIDS.
description: Side A: The director of NIAID, Tony Fauci, listens to a presentation by ACT UP New York activists Maxine Wolfe, Risa Denenberg, Heidi Doro and ACT UP D.C. activists Lorrie Sprecher, Linda Meredith. Topics focus on the neglect of research for women's health issues in contrast to men's, plus statistics about women with AIDS. Start of tape includes a brief discussion with Fauci's colleagues about why they would like to record the meeting with video and audio. SIDE B: Conversation continues about the need to develop of research protocols that include women, including criteria for writing grants, primary healthcare for research subjects during clinical health trials, funding for the creation of research sites, priority to trial designs that include women, and other desired actions.
creator: Donated by Maxine Wolfe on 1993-07-26
date: 1990-07-27
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2018
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACT UP Organizing Meeting
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: Women in an ACT UP organizing meeting strategize how to recruit activists to grow their community and perform inclusive outreach to support different needs, specifically with connecting healthcare professionals with subjects.
description: Side A: Women in an ACT UP organizing meeting strategize how to recruit activists to grow their community and perform inclusive outreach to support different needs. Specifically, the ways they might connect healthcare professionals with subjects willing to assist with research. Howard Minkoff, MD, is mentioned as an example of a healthcare professional who has successfully cultivated relationships with patients during clinical trials. Side B: Meeting continues with a stated focus on current studies related to perinatal transmission research are countered with suggestions for improved protocol.
creator: Donated by Maxine Wolfe on 1993-07-26
date: 1991-12-02 to 1991-12-05
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

ACTG Meetings with Sten Vermund (Tape 2)
subject: AIDS (Disease) and mass media; AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); Demonstrations--New York (State)--New York; Civil disobedience--New York (State)--New York; AIDS (Disease)--Political aspects; Civil disobedience; Demonstrations; New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials ; Drugs--Testing ;Clinical trials of drugs ; Drug bioscreening ; Drug trials ; Drugs--Clinical trials ; Drugs--Effectiveness--Testing ; Drugs--Evaluation ; AIDS (Disease) in women
description: Meeting between ACTG [AIDS Clinical Trials Group] and Sten Vermund discussing Women with HIV/AIDS and the clinical trials and drug testing, as well as treatment options and the future of their work.
description: Meeting; Side A: NIAID, NIH, observational database, studies, explanation of different sites, tests during pregnancy while in study - sonograms and ultrasounds, Puerto Rico, tertiary care, AZT, Medicaid, 076 study, adverse reactions, pediatric studies, Whiz study, studies biased to AZT users, questions about sex with women, women to women transmission, lack of information, symptoms of headaches and memory loss, perinantal transmission.
creator: Donated by Maxine Wolfe on 1993-07-26
date: 1991-12-02 to 1991-12-05
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

AIDS Clinical Trials Group, 1992
subject: N/A
description: Women from ACT UP LA and some gay men who worked with them, attending the AIDS Clinical Trials Groups Meetings in Washington, D.C.
description: This is a tape of women from ACT UP LA (lesbian and heterosexual) and some gay men who worked with them, attending the AIDS Clinical Trials Groups Meetings in Washington, D.C. from November 3-November 5, 1992. It has footage of them in their hotel rooms , as well as footage of researcher meetings, the activists discussing what they have heard and the action they did at the Democratic Party Election Night Shindig, where they took over the stage with a banner that read "NO MATTER WHO IS PRESIDENT, AIDS IS STILL A CRISIS" as Jesse Jackson was finishing his speech after the results showed that Clinton was elected. There is also footage of them planning their strategy for getting on stage of of them waiting for the perfect moment and celebrating afterwards. There is footage of them on the mall in the evening just having fun. There is also footage of them watching Bush concede (in their hotel room watching TV), of them finding out that Mary's boss is one of 50 people invited to attend a meeting with Clinton's staff re: AIDS on the following Saturday and of them preparing material for her, along with Iris Long (ACT UP NY) and Vic Hernandez (ACT UP NY). Most of the footage was taken either by Mary Lucey (an HIV-infected lesbian who was in ACT UP LA, on the ACT UP National Women's Committee, and later co-founded Women Alive in LA), Nancy McNiel (Mary's lover also in ACT UP LA, the National Women's Committee and co-founder of Women Alive), and Seh Welsch (a Native-American Lesbian who founded Santa Barbara ACT UP, was on the National Women's Committee and is the E.D. of the Indian Health Center in Santa Barbara). Also in the video are Vic Hernandez (a Mexican-American from the S.F. area but a member of ACT UP NY at the time) and Kyioshi Kurimyia (an Asian-American who was a member of ACT UP Philadelphia, and founded Critical Path, a newsletter about AIDS treatments, especially alternative and wholistic treatments), both of whom are gay men. Iris Long, a heterosexual woman who…
creator: Mary Lucey, Seh Welsch, and Nancy Mc Niel; Donated by Maxine Wolfe in 1993
date: 1992
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

CDC Hearing [Linda Meredith address]
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: Presentation at the final CDC hearing by Linda Meredith, followed by physicians, about the definition of AIDS activists, especially the inclusion of lesbians, difference from advocates, and inaccurate characterizations.
description: Presentation at the final CDC hearing by Linda Meredith about the definition of AIDS activists, especially the inclusion of lesbians, difference from advocates, and inaccurate characterizations. Meredith also recalls the achievements AIDS activists, especially from ACT UP, had made in the past years. Recording also includes presentations by physicians, who discuss the need to change the CDC definition of AIDS.
creator: Donated by Maxine Wolfe on 1993-07-26
date: 1992
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2018
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

Defining a National AIDS Policy Panel
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: NIH-moderated panel about defining a national AIDS policy, research health services, and prevention in four talks from Maxine Wolfe (ACT UP), Dr. Wanda Jones (CDC), Corola Marta (Yale physician), and community activist Michelle Lopez.
description: [Julie Auerbach] Coordinator of the Behavioral and Social Science activities in the office of AIDS research at the National Institute of Health moderates a panel that discusses defining a national AIDS policy, research health services, and prevention in four talks. The panel begins with ACT UP activist Maxine Wolfe, followed by Dr. Wanda [Johns/Jones], the Associate Director for Women's Health at the Center for Disease Control. Side B continues with Dr. Wanda [Johns/Jones], followed by [Corola] Marta, a physician with the Yale AIDS program whose work was focused on inner-city primary care and women's health. The recording cuts off the last talk from community activist Michelle Lopez involved in issues related to women and children in New York. Lopez was also on the board that planned the conference.
creator: Donated by Maxine Wolfe on 1993-07-26
date: Undated
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

FDA Accelerated Approval Meeting
subject: AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women
description: Meeting between ACT UP and other HIV/AIDS activists and employees of the Federal Drug Administration regarding recent FDA activities in accelerated approval and expanded access to drugs.
description: Meeting between AIDS activists, including ACT UP member Maxine Wolfe, and empolyees of the Federal Drug Administration. Also included in the meeting are researchers who studied HIV/AIDS in clinical trials, as well as physicians at various clinics. The purpose for the meeting was to discuss recent activities of the FDA regarding accelerated approval and expanded access to drugs. Also discussed are the influence of corporations and recent scandals.
creator: Donated by Maxine Wolfe
date: 1994-08-07
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2016
rights: Maxine Wolfe Licensed under CC BY-NC-ND
language: English

Gay Men's Health Crisis [Living with AIDS],
subject: AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Drugs--Testing; Clinical trials of drugs; Drug trials; AIDS (Disease) in women
description: Episode of Gay Men's Health Crisis (GMHC) cable show Living with AIDS, covering topics related to women with AIDS.
description: Episode of Gay Men's Health Crisis (GMHC) cable show Living with AIDS, covering topics related to women with AIDS. Begins with clip from CBS special "Aids Hits Home", acknowledging new media coverage of heterosexual women with AIDS because of an inherent threat to middle class. Ruth Rodriguez from the Hispanic AIDS Forum notes that IV drug users comprise 60% of HIV+ women, a social group largely ignored by health professionals. Outreach and AIDS education media should be produced for a range of social groups. References Needle Talk, a series released by the New York Department of Health with physicians and educators discussing IV drug use, sex, and AIDS/HIV transmission.
creator: Jean Carlomusto; Donated by Maxine Wolfe in 1993
date: Undated
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Gay Men's Health Crisis Licensed under CC BY-NC-ND
language: English

Outlooks, March 26, 1989 [New York City's response to AIDS]
subject: AIDS (Disease) AIDS (Disease)--Political aspects--United States; ACT UP (Organization); AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States
description: GLIB (Gay and Lesbian Independent Broadcasters): Radio program "Outlooks" hosts a roundtable discussion with ACT UP members to discuss NYC's Response to AIDS, from policies to public opinion.
description: GLIB (Gay and Lesbian Independent Broadcasters): Radio program "Outlooks" focuses on NYC's Response to AIDS, from policies to public opinion. Roundtable discussion between hosts Sherwin Thomas, and Elain Meredith and ACT UP Guests: Jim Aygo of the Treatment Issues Committee, Richard Jackman of the Housing Issues Committee, Alexis Danzig - Spokeswoman ACT UP's Women's Caucus. plus Executive Director of Minority Task Force on AIDS, Ronald Johnson.
creator: Donated by Maxine Wolfe on 1993-07-26
date: 1989-03-26
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: Gay and Lesbian Independent Broadcasters Licensed under CC BY-NC-ND
language: English

Target City Hall, 1989
subject: AIDS (Disease) and mass media; AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); Demonstrations--New York (State)--New York; Civil disobedience--New York (State)--New York; AIDS (Disease)--Political aspects; Civil disobedience; Demonstrations; New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Police; Medical care; City Hall Park (New York, N.Y.); Arrest (Police methods); Koch, Ed, 1924-2013. Mayor;
description: Produced by DIVA TV, this video focuses on the ACT UP action known as Target City Hall when activists demonstrated against access to AIDS drugs and Mayor Ed Koch's response to the crisis at the New York City Hall.
description: This video, produced by DIVA TV, focuses on the ACT UP action known as Target City Hall when activists demonstrated against access to AIDS drugs and Ed Koch's response to the crisis at the New York City Hall. Footage includes organizing, demonstrations where activists confront the New York Police Department, and activists engaging in civil disobedience by passively resisting the address. There are also interviews with individual activists throughout the video.
creator: DIVA TV; Donated by Maxine Wolfe in 1993
date: 1989
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: James Wentzy, Diva TV Licensed under CC BY-NC-ND
language: English

Target City Hall [D.I.V.A. Footage], 1989
subject: AIDS (Disease) and mass media; AIDS (Disease); Television broadcasting--News; Television coverage of news ; Television journalism; Television news; AIDS (Disease)--Political aspects--United States; ACT UP (Organization); Demonstrations--New York (State)--New York; Civil disobedience--New York (State)--New York; AIDS (Disease)--Political aspects; Civil disobedience; Demonstrations; New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Police; Medical care; City Hall Park (New York, N.Y.); Arrest (Police methods); Koch, Ed, 1924-2013. Mayor
description: Handheld video recording of the ACT UP action "Target City Hall" on March 28, 1989.
description: Handheld video recording of the ACT UP action "Target City Hall" on March 28, 1989. Footage includes: ACT UP members chanting "Health Care is a right," "the whole world's watching," "shame," "act up, fight back, fight aids;" protestors engaging in civil disobedience by sitting down in the street and blocking traffic; police arresting protestors and insisting that protestors stay on the sidewalk; protestors carrying signs; discussion with an ACT UP lawyer and a police officer about the arrest of Jimmy Floris (sp?) who was brought to the 7th precinct.
creator: Donated by Maxine Wolfe in 1993
date: 1989-03-28
contributor: Processed by Pratt School of Information LIS-668 students, Fall 2015
rights: James Wentzy, Diva TV Licensed under CC BY-NC-ND
language: English